{"id":12397,"date":"2019-01-15T15:18:03","date_gmt":"2019-01-15T14:18:03","guid":{"rendered":"https:\/\/kaks.hb-dev.de\/2019\/01\/15\/study-on-quality-of-life-after-rb-disease\/"},"modified":"2024-09-25T15:32:04","modified_gmt":"2024-09-25T13:32:04","slug":"study-on-quality-of-life-after-rb-disease","status":"publish","type":"post","link":"https:\/\/kinderaugenkrebsstiftung.de\/en\/study-on-quality-of-life-after-rb-disease\/","title":{"rendered":"Study on quality of life after RB disease"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"12397\" class=\"elementor elementor-12397 elementor-8574\" data-elementor-settings=\"{&quot;ha_cmc_init_switcher&quot;:&quot;no&quot;}\" data-elementor-post-type=\"post\">\n\t\t\t\t<div class=\"elementor-element elementor-element-59b61e82 e-flex e-con-boxed e-con e-parent\" data-id=\"59b61e82\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-76c1234b e-con-full e-flex e-con e-child\" data-id=\"76c1234b\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-9a11ac1 elementor-widget elementor-widget-ha-post-info happy-addon ha-post-info\" data-id=\"9a11ac1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"ha-post-info.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"ha-inline-items ha-icon-list-items ha-post-info\">\n\t\t\t\t\t<li class=\"ha-icon-list-item elementor-repeater-item-999a920 ha-inline-item\" itemprop=\"datePublished\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"ha-icon-list-text ha-post-info__item ha-post-info__item--type-date\">\n\t\t\t\t\t\t\t\t\t\t15.01.2019,\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t<li class=\"ha-icon-list-item elementor-repeater-item-f210479 ha-inline-item\" itemprop=\"about\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"ha-icon-list-text ha-post-info__item ha-post-info__item--type-terms\">\n\t\t\t\t\t\t\t\t\t\t<span class=\"ha-post-info__terms-list\">\n\t\t\t\t<span class=\"ha-post-info__terms-list-item\">Unkategorisiert<\/span>\t\t\t\t<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-192a9d08 elementor-widget__width-initial elementor-widget elementor-widget-ha-post-title happy-addon ha-post-title\" data-id=\"192a9d08\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"ha-post-title.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"ha-post-title elementor-size-default\">Study on quality of life after RB disease<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-54b1809f elementor-widget elementor-widget-spacer\" data-id=\"54b1809f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-18497b5e e-con-full e-flex e-con e-child\" data-id=\"18497b5e\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;_ha_eqh_enable&quot;:false}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1eba493c elementor-widget elementor-widget-spacer\" data-id=\"1eba493c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-41e9b50 elementor-invisible elementor-widget elementor-widget-image\" data-id=\"41e9b50\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1094\" height=\"614\" src=\"https:\/\/kinderaugenkrebsstiftung.de\/wp-content\/uploads\/2019\/01\/KAKS-Studie-Lebensquali.png\" class=\"attachment-full size-full wp-image-8577\" alt=\"\" srcset=\"https:\/\/kinderaugenkrebsstiftung.de\/wp-content\/uploads\/2019\/01\/KAKS-Studie-Lebensquali.png 1094w, https:\/\/kinderaugenkrebsstiftung.de\/wp-content\/uploads\/2019\/01\/KAKS-Studie-Lebensquali-300x168.png 300w, https:\/\/kinderaugenkrebsstiftung.de\/wp-content\/uploads\/2019\/01\/KAKS-Studie-Lebensquali-1024x575.png 1024w, https:\/\/kinderaugenkrebsstiftung.de\/wp-content\/uploads\/2019\/01\/KAKS-Studie-Lebensquali-768x431.png 768w\" sizes=\"(max-width: 1094px) 100vw, 1094px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1fd256c6 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"1fd256c6\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>An interesting study from the University of Amsterdam led by Prof. Dr. Annette Moll shows that the quality of life of RB patients is good compared to patients with other cancers.<br \/>\nHowever, the fear of developing second primary malignancies, further vision loss and passing the disease on to children are important lifelong adversities for both survivors and parents. <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3c2f480 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"3c2f480\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Here we would like to publish a summary of the study in English.<br \/>\nYou can find the entire study in the attached PDF. <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4b595ed elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"4b595ed\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Psychosocial aspects of retinoblastoma patients in the Netherlands July 2018<\/strong><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4388520 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"4388520\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Long-term retinoblastoma survivors experience a good overall quality of life and limited psychosocial problems in comparison with peers.<br \/>\nBut fear of developing second primary malignancies, further loss of vision and passing the disease on to their offspring are important lifelong adversities in survivors, as well as in parents. <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-660cd68 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"660cd68\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Retinoblastoma is diagnosed and treated in first years of life.<br \/>\nTherefore it could have effect on people&#8217;s personality and psychosocial maturation.<br \/>\nIt is known that negative life events threaten secure attachment between infant and caregiver.<br \/>\nParental distress and uncertainty is caused by diagnosis, treatment and prognosis.<br \/>\nFamily&#8217;s ability to cope with uncertainty affect functioning of the child.<br \/>\nOverprotection is a serious risk factor for delayed autonomy, delayed entry into long-term-partnership, and depression.<br \/>\nSide effects of treatment is a constant reminder for the retinoblastoma survivor that he or she is different from others.      <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8a960f2 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"8a960f2\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>It seems particularly important how survivors themselves, as well as their environment cope with the disease, and whether the consequences of retinoblastoma are actually being experienced as a problem.<br \/>\nAlthough most retinoblastoma survivors learn to live with the consequences of their disease, a subgroup of adult retinoblastoma survivors and parents report more internalizing problems and worries, and perceive specific restrictions in daily life.<br \/>\nA substantial part of the patients that survived this disease in the last few decades needed special educational services and were confronted with bullying at school &#8211; whether or not there is a relationship between these two factors remains unclear.<br \/>\nSurvivors at risk were those who had a combination of heredity and intensive treatment with external beam irradiation in a context of other life events, with less social support, experience of bullying in childhood, experience of restrictions in daily life, problems in accepting the disease, and those using emotion-oriented coping.     <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0d50bd9 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"0d50bd9\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>It is important to evaluate the functioning of survivors during their individual follow-up bearing these risk factors in mind, so that they may be referred for psychological guidance or treatment in case of psychosocial problems.<br \/>\nTherefore we developed RetinoQuest.<br \/>\nThis is a touch screen computer program to monitor health related quality of life of retinoblastoma survivors via patient reported outcome measures targeting children (4-10 years) as evaluated by their parents (proxy measures), adolescents (11-18 years) and adults.<br \/>\nThe doctor discusses the outcome immediately with the patient during visit retinoblastoma clinic.<br \/>\nIf a patient reports psychological problems we organize psychosocial support by our psychologist.    <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bc13cf2 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"bc13cf2\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Source: Annette C. Moll, MD, PhD, Professor of Ophthalmology, Amsterdam University Medical Centers, location VU University Medical Center<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5907e87 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"5907e87\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Adapted from\/References:<\/strong><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6cd2b46 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"6cd2b46\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Thesis Jennifer van Dijk, 2009 VU University Amsterdam<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f751bb1 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"f751bb1\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\tvan Dijk J, Oostrom KJ, Huisman J et al.\nRestrictions in daily life after retinoblastoma from the perspective of the survivors.\nPediatr.\nBlood Cancer 54, 110-115 (2010).     \t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-07a2fe2 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"07a2fe2\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t  van Dijk J, Grootenhuis MA, Imhof SM et al.\nCoping strategies of retinoblastoma survivors in relation to behavioral problems.\nPsychooncology 18, 1281-1289 (2009).    \t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5e927c5 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"5e927c5\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t  van Dijk J, Huisman J, Moll AC et al.\nHealth-related quality, of life of child and adolescent retinoblastoma survivors in the Netherlands.\nHealth Qual.\nLife Outcomes 5, 65 (2007).     \t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b048b1a elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"b048b1a\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>McNeill NA, Kors WA, Bosscha MI, et al.<br \/>\nFeasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors.<br \/>\nJ Cancer Surviv.<br \/>\n2017 Dec;11(6):683-690.     <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-75e958c elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"75e958c\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_mobile&quot;:&quot;fadeIn&quot;,&quot;_animation_mobile_extra&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Moll AC, van Dijk J, Bosscha MI et al.<br \/>\nSecond malignancies and other long-term effects in retinoblastoma survivors.<br \/>\nIn Retinoblastoma: Clinical Advances and Emerging Treatment Strategies.<br \/>\n2013.<br \/>\nP. 109-125 www.futuremedicine.com    <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6d81783d elementor-widget elementor-widget-spacer\" data-id=\"6d81783d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-246b9ffc elementor-position-inline-end elementor-mobile-position-inline-end elementor-view-default elementor-widget elementor-widget-icon-box\" data-id=\"246b9ffc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-box-wrapper\">\n\n\t\t\t\t\t\t<div class=\"elementor-icon-box-icon\">\n\t\t\t\t<a href=\"https:\/\/kinderaugenkrebsstiftung.de\/en\/about-retinoblastoma\/treatment\/\" class=\"elementor-icon\" tabindex=\"-1\" aria-label=\"Back\">\n\t\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" height=\"25.02\" viewBox=\"0 0 60 25.02\" width=\"60\"><path d=\"m-11.653 0 4.393 5.8 4.324 5.659h-56.764v2.1h56.764l-4.324 5.662-4.393 5.8h2.46l9.493-12.511-9.493-12.51z\" fill=\"#283444\" transform=\"translate(59.703)\"><\/path><\/svg>\t\t\t\t<\/a>\n\t\t\t<\/div>\n\t\t\t\n\t\t\t\t\t\t<div class=\"elementor-icon-box-content\">\n\n\t\t\t\t\t\t\t\t\t<h3 class=\"elementor-icon-box-title\">\n\t\t\t\t\t\t<a href=\"https:\/\/kinderaugenkrebsstiftung.de\/en\/about-retinoblastoma\/treatment\/\" >\n\t\t\t\t\t\t\tBack\t\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>An interesting study from the University of Amsterdam led by Prof. Dr. Annette Moll shows that the quality of life of RB patients is good compared to patients with other cancers. However, the fear of developing second primary malignancies, further vision loss and passing the disease on to children are important lifelong adversities for both [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":6748,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"uix_meta_title":"","uix_meta_description":"","uix_canonical_url":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-12397","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-unkategorisiert"],"_links":{"self":[{"href":"https:\/\/kinderaugenkrebsstiftung.de\/en\/wp-json\/wp\/v2\/posts\/12397","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/kinderaugenkrebsstiftung.de\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/kinderaugenkrebsstiftung.de\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/kinderaugenkrebsstiftung.de\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/kinderaugenkrebsstiftung.de\/en\/wp-json\/wp\/v2\/comments?post=12397"}],"version-history":[{"count":0,"href":"https:\/\/kinderaugenkrebsstiftung.de\/en\/wp-json\/wp\/v2\/posts\/12397\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/kinderaugenkrebsstiftung.de\/en\/wp-json\/wp\/v2\/media\/6748"}],"wp:attachment":[{"href":"https:\/\/kinderaugenkrebsstiftung.de\/en\/wp-json\/wp\/v2\/media?parent=12397"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/kinderaugenkrebsstiftung.de\/en\/wp-json\/wp\/v2\/categories?post=12397"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/kinderaugenkrebsstiftung.de\/en\/wp-json\/wp\/v2\/tags?post=12397"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}