“On my first visit to an RB meeting, I was very moved by the joy, the warm atmosphere and all the inspiring children, families and helpers. Since then, I have been deeply impressed by the community that KAKS has created – a place full of cohesion and positive experiences. When I tell other people about the disease, I often see surprised faces, as many have never heard of it. This is what motivates me, as part of this community, to educate more people about the symptoms and treatment options. I am happy to lend a hand wherever support is needed and contribute my energy to various topics related to event organization and fundraising.”

Mariella von der Wense
KAKS team