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More InformationParent-child projects
We know how important exchanges, encounters, listening and processing are.
That’s why we bring people together, network with experts and encouragers, support, advise and empower.
RB MEETING
When we invited people to an RB meeting for the first time in summer 2013, two families and three adult RB Survivors attended.
A cautious encounter.
But immediately the feeling: these meetings are something very special. Characterized by great trust and shared experiences that connect in a special way, this was a group in which people can exchange ideas, name fears and hardships, laugh together and share valuable experiences. The three adult survivors told us that they had never met anyone diagnosed with RB before in their lives and had been alone with it for decades.
It was immediately clear: we want to change that.
Almost 500 people now register for our meetings.
We are proud that there is now a self-confident KAKS Teens group, that people meet with us and that lifelong friendships are formed. In recent years, we at KAKS have learned a lot about the needs, hardships, fears and wishes of those affected and have now established many services for children and their families.
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“Listening to each other and encouraging each other – spending the weekend with like-minded people and receiving professional support gave me so much!
Somehow there was always something special in the room.”
Nele Eberlei,
RB-Survivor and encourager
“Maybe there are better times, but this is ours.”
Jean-Paul Sartre
Offers & Dates
With our meetings and activities, we want to give confidence and rays of hope.
By those affected for those affected – because real experience, informative exchanges and networking unite and strengthen.
"THE TIME IS ALWAYS NOW"
We want to create beautiful moments together with you.
We want you to find like-minded people and friends.
We want to celebrate life with you.
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More InformationRB meeting 2022
Memories and Voices
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More InformationRB meeting 2019
10 years of KAKS
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More InformationRB meeting 2017
5th RB meeting
Elli's
Eyeland
We are here for you at Elli’s Eyeland.
Elli’s Eyeland is the only contact point in Germany for people dealing with retinoblastoma: Children, teenagers, parents, grandparents, siblings, adult survivors, doctors, ocularists and psychologists.
All of this has been made possible by the RTL – Wir helfen Kindern foundation.
KAKS regulars' table
Talking, listening, sharing.
Valuable impulses that offer orientation in difficult situations.
The KAKS Stammtisch is for parents and those affected, directly after the diagnosis or much later in life.
A relaxed, informal exchange that is so valuable and important.
We look forward to seeing you at the KAKS regulars’ table every first Monday of the month from 8 pm via ZOOM.
RB signpost
We guide you safely through the jungle of authorities, explain technical jargon and answer medical questions.
So that you can climb the mountain in front of you and see more clearly afterwards (RB guide).
RB-WORLD APP
Discover other affected people in your area (thanks to our interactive map) and receive valuable information.
Always be the first to know about KAKS events.
Here you can register for events or order Elli.
The RB-World All is available for free in the App Store and on Google Play!
See you there.
Encouraging stories
As encouragers, we all had retinoblastoma and would now like to show you at KAKS that we are completely normal people and: we would like to encourage you!